Feds Plan Baby DNA Grab



Likely due to state, federal and researcher concerns stemming from the Minnesota and the Texas lawsuits regarding government taking, storage, and unconsented use of newborn DNA, the U.S. Department of Health and Human Services yesterday announced a plan to review practices and policies surrounding the use and storage of dried newborn blood spots in biobanks after state genetic screenings, reports GenomeWeb Daily News (free registration required). The executive summary of the white paper is only available at the above link, although it will soon be on the CCHC website. It was drafted by Bradford Therrell, who is director of the National Newborn Screening and Genetics Resource Center (NNSGRC) which is funded by federal tax dollars (approx $3 - 4 million). The white paper is called "Considerations and Recommendations for a National Policy Regarding the Retention and Use of Dried Blood Spot Specimens after Newborn Screening."

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